3 weeks old 29 weeks gestation

Another rough week.  Ryelee has had trouble with her ventilators.  We had a big family/friends fast for her and she is now requiring less oxygen.  She is being given some medicine to help her lungs heal.  Ryelee has had problems all along with not being able to pass stool.  She has been giving enemas repeatedly, which only help a little.  Monday they took her down to radiology and did a barium enema x-ray which showed no blockage in her large intestines and they didn't want to go into the small intestines.  Tuesday her little tummy was distended, and gray.  They thought she may have NEC or be leaking the meconium into her abdomen.  The surgeon did not want to operate then because she was still doing well (vitals and blood work) and her little tummy was still soft.  Early Wed they called her mom and dad to report her tummy was worse and she needed surgery.  Before we could even get there they were prepping her for surgery, which they performed in her room, to minimize the trauma of being moved so much.  The surgeon later told us that she had a little diverticulum (Thanks alot Grammie Pammie) on the R side by the appendix that had a very small hole.  She cut out the diverticulum  and sewed her intestines back together.  They usually have  to do a bag so we really hope this heals well.  Her blood was low last night and because of her incision bleeding (a tiny bit but she doesn't have much anyway and when the vampires come and collect she has even less) they have had to do 2 transfusions, give her vitamin K and some plasma and platelets.  

On Sunday when I was there, oh my word, Ryelee had changed.  I had not seen here in a week and a half due to my health problems.  We got some cute pictures of mom and dad on each side of her "condo" reaching through the doors and touching her.  Grampy got a picture that he swears she is smiling.  I think so too.  On Tuesday when she was so sick Grandma and I were in there and Daddy, Mommy and Grampy were out in the other area.  The nurses raised her lid of the "condo" (isolette) so I knew they were going to be doing something to her.  I walked over to watch of course, that is just how I am.  So I like to talk to her and tell her who is there, give her pep talks, and tell her we love her.  So I told her Grandma and Grammie are here Ryelee.  She opened one eye to look.  Then Mom walked in and I said "Mommy is here Ryelee can you open your eyes for her?" and she did!  It was the cutest thing I ever saw!  She has such a special spirit.  One day We were talking to her and she was trying so hard to open her eyes and she was moving her mouth and it looked like she was trying to say if I could just get this thing out of my throat I would talk to you.  She definitely can "talk" to us.  She is very special and I am so grateful for the opportunity to be her Grammie!